Sunday, 23 November 2008

The first day of the rest of my life

It's been an ..... interesting... week for us this week. First there was the devastating storm last Sunday, and the days of power failure and associated food-throwing-out, mess-cleaning-up, shopping-in-horribly-crowded-shops and stressed out / feral children (yes, mine!). In the middle of all the mayhem we had a peadiatrician appt for JoJo to try to sort out some of her ongoing issues, and he got me to take her for a blood test... it was good that the Dr took me seriously, but awful to have him agree that there is something amiss with JJ.

On Thursday night the Dr rang to tell me that JoJo's readings for coeliac disease all came back off the scale, so it looks like we're heading into gluten-free territory. She needs to have a biopsy done, which I am praying will be able to be done very soon because I need to keep her on a normal diet until it's over. It's just killing me giving her food that I know is making her sick, especially when I have to look into her pale little face as she tells me she has a tummy ache and make her keep eating :( I just want her to be well, and it's pure torture to delay starting the diet that will almost certainly make her feel alot better.


I know it's not really a big deal in the scheme of things, especially compared to what it could have been, but it feels like a big deal at the moment. It's good for me to know that God loves JoJo more than I do and that he's got it all under control... it's just not what I would choose for my family.

3 comments:

Jodie said...

: ( sad to hear about Jo Jo, hope she can start her new diet very soon. I will bring you an order book so you can compare some cost prices of GF stuff xx

Prue said...

We have friends whose daughter is a coeliac, and she wasted away while they were waiting for the biopsy. But now she's on the diet she is SO much better. At least soon you should know for sure.

Lucy said...

Thanks Jodie - very much appreciate your support :) Your lovely cooking makes me feel like I might actually be able to make something edible again one day!

I'm so glad to hear about your friends' little girl Prue. It will be so nice to see my JoJo looking better - I can't wait! Thanks for the encouragement :)